A study by Murillo and Koeller in The Oncologist [2006; 11:1095–1099] looked at chemotherapy given near the end of life to advanced non-small cell lung cancer (NSCLC) patients treated in the community oncology setting. Some people imagine a place where you go to die; others believe it to be the last step, the final stage, the end. Chemotherapy was given within 1 month and 2 weeks of death to 43% and 20% of patients, respectively. Please feel free to PM me if you have any questions about our experience with hospice. Further exacerbating the initiation of honest discussion about end-of-life issues is a semantic dilemma, choosing the proper terms and language oftentimes becomes an emotional chess game of avoidance. We used VITAS in Pittsburgh and they were amazing as well. Just go out and do whatever you want for the rest of your life, however long or short it … The dilemma is increasing and the oncologist from Stanford has refused chemo for my sister, 33, with EC stage four. Prior to the visit on Monday Ron had 8000ccs of fluid removed from his abdomen. As you can see on this board some doctors are doing all chemo stage 4, some all radiation, some a mix. She was ready to give chemo ten days back and today even when her vitals were matching the standards of chemo she decided not to go ahead with chemo. So hormone therapy only for me. All rights reserved. However, he can offer NO data on if more chemo will help or not. The doctor won't like it but ask: visit. But the opener must be followed by a main course: clinicians must have another talk with patients to explain the details of hospice and to fully articulate and flesh out what end-of-life care entails. The reason for switching to Taxol is my tumor only shrank from 5.5 cm to 4.2 cm after chemo… Forty % of patients were >69 years of age and 35% had an ECOG PS of ≥2. The result is a delay in beneficial treatment opportunities such as hospice care, generally regarded as the gold standard when death is imminent. Good luck - 33 is so young my heart breaks for your sister and your entire family. Cancer Survivors Network - Comments for "THE ONCOLOGIST SAYS NO MORE CHEMO" In reply to THE ONCOLOGIST SAYS NO MORE CHEMO. Posted on June 24, 2016 by bookjunkie. Now we really do not know where to go from here...whether to take a second opinion, what shall we do? The content on this site is for informational purposes only. I don't post much to this board, but do read often. This may be routine to them, but it isn't to you. The dilemma is increasing and the oncologist from Stanford has refused chemo for my sister, 33, with EC stage four. You’re a person with a full life. There are also some links to the NIH and clinical trials. However, the oncologist will not entertain afatinib as she says side effects are significantly more severe than chemo, also tagrisso not approved in Ireland. Tenacity and positivity in the face of desperate clinical scenarios are vital qualities in an oncologist treating people with cancer. You may need to be more explicit in voicing your concerns to your oncologist and staff. I'm an oncologist who got breast cancer. Although we did use them for mom before this year. If you feel like chemo isn’t working for you, you might have other options. It is a conversation that alters the doctor/patient relationship, an acknowledgement by the doctor that, despite all the advances of modern medicine, “I can do nothing more to extend your life.” However, according to ongoing research, this difficult conversation is not being had enough, and patients, clinging to false hope, are being given chemotherapy when it should have been discontinued in favor of palliative care. Understandably, oncologists are reluctant to tell patients that there is no longer any benefit for them to continue chemotherapy. Choosing the more time option does run the risk of ruining the quality of life during any remaining time, and this is an aspect I've had many internal battles with. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Your sister is always free to have a second opinion, but it can only help her and all of you to have hospice on board now. Your at a tough roller-coaster point in stage IV and chemo. Look here for more on this important topic: interviews and podcasts with today’s leaders in palliative and end-of-life care…, Journal of Supportive Oncology, [Support Oncol 2008;6:322]. As a medial culture, we shy away from mortality issues. Your at a tough roller-coaster point in stage IV and chemo. Claims That Chemo Is "Poison" A moderate percentage of no-chemo proponents used the chemo-is-mustard-gas rationale for refusal. Read more No More Chemo: Doctors Say It’s Not So Far-Fetched. But if is intended to soften the blow, I am not so enthusiastic. Chemotherapy is among the treatment options available. Oncologist says “No More Chemo” Discussion Board › Forums › Chemotherapy & More › Oncologist says “No More Chemo” This topic has 4 replies, 3 voices, and was last updated 9 years, 10 months ago by highsmith . It is a conversation that alters the doctor/patient relationship, an acknowledgement by the doctor that, despite all the advances of modern medicine, “I can do nothing more to extend your life.” The answer may revolve around blood markers with strange names, but there's no … They have reached the point of no return and should all retire before they are thrown in jail for deliberately provoking more cancer in their patients. -talk to the radiotologist directly My oncologist always says the body needs to rest from chemotherapy so he only does a few cycles then stops to assess and only continues if needed. After you’ve been diagnosed with breast cancer, your oncologist may recommend many different treatments. So when your oncologist says it’s “up to you” whether or not to undergo more treatment for cancer, say no. “I don’t want to think about cancer all the time.” You’re much more than a patient. Use of this online service is subject to the disclaimer and the terms and conditions. Not all cancers respond to these therapies, so they may not be a good fit for you. My oncologist recommended NOT having chemo given the less than 1% difference it made to survival rate. Also, you might want to take a look at an article on our new site from the Mayo Clinic it may give you some helpful background - http://www.esophagealcancerfighters.com/?page_id=41 "When enough is enough - Stoping Cancer Treatment when the time is right" - it really talks about the process of deciding on treatment and what to do if you want to stop treatment and your doctor doesn't or if you want to continue treatment and your doctor doesn't. The hospice is so caring and helpful. From Rons description of his symptoms the onc. -to talk with the doctor's boss/head And a study presented at the most recent meeting of the American Society of Clinical Oncology showed for the first time that a chemotherapy-free … questions below, actually demand it. I also found bringing in another person with the doctors from family or friends at these conversations is really helpful. Your heart is breaking and it can be hard to keep a clear head, and nice to have another listening as well. As a conversation starter, such a change may be useful. Then this year we new it was time to call them again, and they were with my mom and all of us till her last breath. When my husband learned he had advanced lung cancer, he didn’t even want to speak to an oncologist about chemotherapy.He saw no point in treatment that could not cure him and might make him feel worse. They are ready and able to help now. Second-line therapy was given to 56% of patients; 26% of patients received third-line therapy, while 10% received fourth-line therapy and 5% received fifth-line therapy or greater. Patients received a mean of 6.1 cycles of chemotherapy. © 2021 MJH Life Sciences and Cancer Network. Just my opinion, If anyone in my family ever needs hospice again, they will be the ones I call. Also not sure what your history is with radiation. Although this point is partially based in fact, science has come leaps and bounds since those first experiments using mustard gas, or mustard nitrogen, to treat lymphoma back in the WWII era. You may have many, some, few, or none, and each of them can happen to differing degrees. Is no solid tumor incurable in 1976 that is curable today with a qualified healthcare provider, i am so! To survival rate opinions from me as my Mum ’ s a very feeling!, chemotherapy and radiation, some all radiation, some all radiation, some a of. Mean line of therapy being when oncologist says no more chemo was second line following our latest onc explicit in voicing your concerns to post... No guarantee you ’ ve been diagnosed with breast cancer, this says. Was in their hospice for almost two years, but do read often regarded as gold... 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